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Gettin’ Back

July 29, 2010

Rediscover your spirit. Be LymeSexy!

A musician friend of mine named Marc Black wrote, “When you get back, you never get back to where you been, you always get back to where you’re going.”

Anyone can piss and moan about their problems, but rising above them is the only way to move on. With a chronic illness like Lyme Disease, it isn’t about being the same as you were before. You’ve been changed and whether that’s for better or worse is a function of your will.

That reality is hard to process. It requires folks to reach deep inside and find a spark of that joyful place that’s been crushed. To grab it and nurture it with an act of sheer will until it begins to glow again. The physical and medical battles are, of course, critical to recovery; but I believe, with no reservations at all, that the single most important piece is to understand that there is no recovery until you can rise above the fight and set your eyes on where you’re going and believe that you’ll get there.

I’m putting together a website dedicated to that single purpose. Providing the Lyme community with a forum for positive feelings in the depth of despair. A place where we can create emotional and financial support for others who are fighting their way back. A place where stories about compassion and strength in the face of adversity can inspire and where reliable direction to quality information can be resourced. It will be called (naturally enough) “LymeSexy.”

To that end, this message is intended to solicit your stories, blurbs, anecdotes, pictures and ideas for inclusion (anonymously or with full credit – your choice) in the site. The anticipated launch will be this Fall.

If you’re interested, send me an email. Address it to: I’ll get back to you immediately. Please note: I don’t want financial contributions, just honest input (no, that’s too weak). I want your heart and soul.

By the way, you can listen to “When You Get Back” for free. Just give that title a “click.” It’s track #3 on Marc’s album, “Stroke of Genius,”  the sound track for an independent film about a truly inspirational recovery. Check it out: you’ll be surprised at who else is playing with him.



6 Comments leave one →
  1. UnaSpenser permalink
    July 29, 2010 11:17 am

    But, of course I want to be a part of your new venture!

    I find that part of looking forward is facing what’s inside. My recent blog post about the Beast of Burden, for instance, wasn’t about whining. In fact, I found that I was very calm in facing the reality of that beast. It was a #lymesexy convo on twitter that sparked me to call out that beast and take a look at what I needed to face.

    One of the beauties of having your life ground down to zero is that you can face these things with more equanimity because you have nothing to lose. If I find that taming that beast brings about some core transformation which means walking in a different direction from there forward, well, I’m not looking at walking away from a steady job or giving up much of anything, really, except my fear. I’m at ground zero and anything is improvement, so why not aim for the most free spirit I can?!

  2. July 29, 2010 11:33 am

    looking forward to seeing your vision become a reality! LymeSexy sounds like an amazing idea!

  3. Bobbi permalink
    July 29, 2010 10:16 pm

    Cris, I know how terribly hard all this has been for you and feel blessed that you are becoming more and more ‘LymeSexy’ every day! That you have ‘reached deep inside’ to find that place of joy and apparent strength IS LymeSexy. As you journey forward to where you are going, I believe you will do amazing things….as you have all your life. You have my endless support ‘gettin’ back. Bobbi

    • cejesq permalink*
      August 2, 2010 8:41 am

      We support each other. That’s what friends are for. Thanks for being my friend.

  4. Ashley van Tol permalink
    July 29, 2010 11:57 pm

    Yep this one goes right along with my post from today. I guess I am about to start the next phase of my battle.

    • cejesq permalink*
      July 30, 2010 8:06 am

      Thanks, Ash. “Sing with me, I’ll sing with you, and so we will sing together as we march along.”

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